HC&U

Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!

Categorias: Salud

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In this bonus episode of HC&U, we talk with Kristen Skvorak, a preclinical consultant focused on rare diseases, about drug development, research, and potential treatment options for HCU.

We would like to give a special thanks to Syntis and Iditarod!

During Lindsey's Low Pro Snacks, we discuss Lesser Evil Paleo Puffs.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

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What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

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